Molly, Frank and I cherish your support for Molly. We’re sorry we haven’t been better at giving updates on her situation. As you know, she isn’t able to write or talk without exhausting herself and bringing on more symptoms. We haven’t had clear news to convey because her body has had such intolerance for many medications, antibiotics and supplements. That has also kept us hopping, looking for solutions.

Here is a piece of news, however, that we hope will turn out to be significant. It could make sense of the variety of frustrations we’ve met with. A Lyme doctor who has noted Molly’s low tolerance and sensitization to antibiotics and other medications, and her history of toxin exposures, points out that she may have a genetic predisposition against recovering from such exposures (especially to Lyme toxins and molds). She may be lacking an enzyme necessary to break down the toxins. She should receive the HLA test (Human Leukocyte Antigen test) to determine which pathway for detox is blocked, and also a test for methylation defect. Then measures could be taken to counteract any such problem. (The doctor has 5 patients who had the same trouble, were tested and are improving.) This sounds promising! Fingers crossed!

Note: Molly has been suffering with increasing neurological symptoms. Everything seems to move at a stately pace in the medical world, but on Monday, Dec. 14th, we are expecting to get the tests--10 of them!--done for missing enzymes etc. . Then we wait for the results, and see what to do about them...